NICU day 7
The past 24 hours have been filled with good news for Daniela.
Last night, they began normal feedings and I'm happy to report that she took to the bottle like a fish to water. She's done so well with it that they increased her amount from 10 ml per feeding to 30. They've also begun to wean her off the IV; the volume she's receiving today has been reduced to a third of what she was originally getting. She also has been moved from a warmer to an isolette and she may be moved to a crib tonight or tomorrow.
A and I had the pleasure of feeding her today at both 11 a.m. and 2 p.m. It was divine. To get to hold her, cuddle, burp her (that's my girl!), change her diaper, etc....lovely. She even opened her eyes and we spent a few minutes checking each other out. After all, she's been so out of it, she hasn't seen me in a week so she's probably wondering who the hell the lady with the dark hair is who's all up in her face. We're heading back tonight for the 8 p.m. feeding and some more quality snuggle time. I can't get enough of it, and to see her face without that vent tube in her mouth...it doesn't get much better than that (until, of course, the day I'm looking at her pretty face in the comfort of our own home).
Today, the pediatric hematologist stopped by to tell us that so far the hematology labs that have come back have all been normal. He's so confident that the remaining tests (those that won't be back until next week) will be normal as well, that he noted her chart as such and will call us only if it turns out that something comes back abnormal. Alas, he doesn't expect it to but if it does, he assured us that it would be nothing huge and it would mean only that she'd need to get the lab(s) repeated at 6 months to recheck them.
There was more talk today while we were at the hospital that Daniela may get to come home this weekend. However, I know to take that with a grain of salt and just play it day-by-day.
Tomorrow they'll run another EEG to check for seizure activity and do another phenobarb level to make sure it's decreasing nicely. Thankfully, they were able to get enough blood from her without depleting her supply so no transfusion--yea!!
I know a lot of times, good news in the NICU consists of one step forward, two steps back but we've been the lucky recipients of several good steps forward yesterday and today without the resultant step back. How I hope this continues :-)
Thank you, thank you, thank you for the continued love.
14 Comments:
Feed her! Hold her! Banner day indeed. All my best for her home this weekend.
She's beautiful.
I can't tell you how ofen you've been in my heart. I find myself putting on my makeup and thinking of you, or as I drive to work.
It is my fervent prayer that Daniela come home with you swiftly, and that all of the labwork and tests come back clear.
Enjoy the weight of her against your chest. There is no other feeling like it.
Great news, Dee! It's nearing 8:00 and I can only think how happy you must be on your way in to your girl. Crossing my fingers that, if not this weekend, she'll come home soon :)
yes! another picture! She's absolutely lovely I can't wait to hear that she's going home.
Oh Dee, I hope that the good steps forward lead you right out the door and on the way home with Daniela snuggled in her car seat very soon. I am routing for you all every day. Thanks for posting a pic. She is so, so adorable.
She is such a gorgeous girl!
I'm so glad that she's doing so well, and that you finally get some much-needed snuggle time!
Hoping all the steps in days to come are forward, forward only!
She is soooooo beautiful! Thinking of you!
I know how reluctant you must feel to be optimistic at this point, so I'll do it for you. Optimism! Hope! Much love from your fans in California... Mama and Chebbles.
This is the best news I've heard all day. She really is gorgeous. Happy snuggling, Mama, and way to go, Daniela!
Hope she really is home soon.
she's absolutely gorgeous. so glad the news continues to be encouraging!
what a lovely photo. I'm so glad things are going well. Sending you lots of love from Canada
Love the picture, love the hair, love the good news, love all of it. Your little darling is going to be home in no time.
Oh Dee...I have been catching up and send you warmest wishes at this time. It is so hard, these NICU days, but I am glad to hear things are getting better. The photo is beautiful.
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