And there's your two steps backwards
EEG today found no seizure activity but there was abnormal brain activity. I don't know what that means, we're hoping to speak with the neurologist this evening to find out more. The terror is back, as are the tears. Trying to hold it together but lots of horrible thoughts are filling my head; I imagine I don't need to go into detail. I'm sure you get the picture. Of course, there is the possibility that the abnormal activity is from the brain swelling but we'll see.
The earliest she may go home is Monday. We've got to attend CPR training tomorrow (though we did it two years ago, a refresher is always nice) and we do know that Daniela will be sent home with an apnea montior--which isn't available until Monday as the unit that doles out home health goods is closed over the weekend (WTH?).
More news as it's fit to print.
8 Comments:
Oh, crap, Dee. I'm so very sorry. I hope it's not anything terribly serious, and that you'll all be able to be home together soon. Much love to you all.
Grrr...I am so sorry hon....but don't jump ahead. wait to hear what the doc has to say. And enjoy all of the great new things you get to enjoy like holding your little one and knowing she will be home on Monday! And dressing her in clothes without wires.
Thinking of you always!
love, a
Oh, hell. I was so hoping you would escape the whole "two steps back" curse, but it seems it gets every one of us when we're in the NICU trenches. Still hoping and praying for a full recovery and a trip home in the very near future for your precious little girl.
That's a frightening term -- you must be living in full terror mode right now, made worse by having briefly let your guard down. I'm so, so sorry, Dee, and I remain hopeful that the news will be good from here on out.
It's so hard getting your hopes up and then finding something scary is happening. Terror is indeed the right word for that feeling. There is still reason to hold out hope, though, that she will be okay and home not too long from now. Remember all the bizarre things Picchi has been through- brain cysts, severe anemia, lymphatic malformation... AND he is fine (knock on wood, of course). This is scary, but she has come so far in a short amount of time. Maybe this is just a clue that she needs a little more time to heal from whatever has happened. My family's prayers and good thoughts are with you and your family every day. Lots of hugs your way, hon.
I am with you...it is maddening that you can't take your baby home NOW. I hated the apnea monitor even though I knew it was for the overall good.
I hope it turns out to be no big deal. Hoping very hard we're back on the forward steps soon.
Damn it, Dee! I hate that you had to have *any* steps backwards! Still, much better to stay in the NICU a few days longer than needed than to leave a few days sooner than you should (said by a mom who had to take her son back after he was released).
Hoping that this isn't something that turns out to be serious and that it all works itself out smoothly.
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